shh.sePublikationer
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Translation and cultural adaptation of research instruments - guidelines and challenges: an example in FAMCARE-2 for use in Sweden
Sophiahemmet University.ORCID iD: 0000-0001-7935-3260
Sophiahemmet University.ORCID iD: 0000-0003-3204-6583
Sophiahemmet University.ORCID iD: 0000-0002-0197-9121
2015 (English)In: Informatics for health & social care, ISSN 1753-8165, Vol. 40, no 1, 67-78 p.Article in journal (Refereed) Published
Abstract [en]

Background: Assessing and evaluating health care is important, and an abundance of instruments are developed in different languages. Translating existing, validated instruments is demanding and calls for adherence to protocol. Purpose: The purpose of this study was to translate and culturally adapt the FAMCARE-2 scale for use in Sweden. Methods: Traditional back-translation and the decentering stance were utilized and assessed. Experts in palliative care clinic and research were involved; the FAMCARE-2 instrument was discussed with family caregivers and content validity was assessed by experienced health professionals. Results: Significant discrepancies were not revealed by back-translation. Using the decentering stance gave reliable structure and opportunities for reflection throughout the translation process. Discussion: Translating an existing instrument into a second language requires interpretation and adaptation more than a naive translation. The back-translation process may be enhanced if the decentering stance is adopted.

Place, publisher, year, edition, pages
2015. Vol. 40, no 1, 67-78 p.
Keyword [en]
Culture, Language, Questionnaires, Research
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:shh:diva-1501DOI: 10.3109/17538157.2013.872111PubMedID: 24393044OAI: oai:DiVA.org:shh-1501DiVA: diva2:686726
Available from: 2014-01-13 Created: 2014-01-13 Last updated: 2016-06-17Bibliographically approved
In thesis
1. Specialized palliative home care teams: Complementary perspectives of team functions and influences on patients and families
Open this publication in new window or tab >>Specialized palliative home care teams: Complementary perspectives of team functions and influences on patients and families
2016 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Persons with life-threatening illness are increasingly being cared for and dying at home. Palliative care strives to cater to multiple dimensions such as physical, psychosocial and spiritual or existential, and meeting these needs in patients and families requires multiple competencies. Palliative care organizations propose organization and delivery of care in teamwork models; however, teamwork is complex and can be approached from various perspectives. Previous research has identified gaps in palliative care regarding which components of teamwork are most effective. The overall aim of this thesis was to explore perspectives of team function in specialized palliative care teams, among health care professionals, families and patients. Study I entailed translation and cultural adaptation of a research questionnaire. Study II entailed qualitative interviews with health care professionals (n=15) working in specialized palliative home care and Study III interviews with patients (n=6) and family members (n=7). In Study IV, an exploratory design was used. Initially team leaders (n=77) in palliative care reported team function. Next, health care professionals (n=61) reported team development in the group development questionnaire, patients (n=43) reported symptoms in the Edmonton Symptom Assessment System and family members (n=45) reported satisfaction with care in the translated and culturally adapted FAMCARE-2 questionnaire. Results of the studies are: (I) a translated culturally adapted and initially tested Swedish language version of the FAMCARE-2 scale, (II) health care professionals report that competence, communication and organization are crucial components of teamwork in specialized palliative homecare, (III) patients and families report that they experience security and continuity of care due to 24/7 care, sensitivity to changing needs and demonstrating caring, and (IV) specialized palliative home care teams have a core of registered nurses, physicians and social workers. Positive associations were found between team maturity and team effectiveness.

Place, publisher, year, edition, pages
Stockholm: Karolinska Institutet, 2016. 86 p.
Keyword
Palliative home care, Teamwork, Patient, Family, Health care professional
National Category
Nursing
Identifiers
urn:nbn:se:shh:diva-2312 (URN)978-91-7549-653-5 (ISBN)
Public defence
2016-06-21, Erforssalen, Sophiahemmet högskola, Valhallavägen 91, hus R, plan 2, Stockholm, 09:30
Opponent
Supervisors
Available from: 2016-06-17 Created: 2016-06-16 Last updated: 2016-06-17Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full textPubMed

Search in DiVA

By author/editor
Klarare Ljungberg, AnnaFossum, BjöörnLundh Hagelin, Carina
By organisation
Sophiahemmet University
Medical and Health Sciences

Search outside of DiVA

GoogleGoogle Scholar

Altmetric score

Total: 106 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf