shh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
A person-centred intervention remotely targeting family caregivers' support needs in the context of allogeneic hematopoietic stem cell transplantation: A feasibility study
Sophiahemmet University.ORCID iD: 0000-0002-6331-8599
Show others and affiliations
2022 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 30, no 11, p. 9039-9047Article in journal (Refereed) Published
Abstract [en]

PURPOSE: Allogeneic hematopoietic stem cell transplantation (HSCT) is an intensive curative treatment that increases family caregivers' burden. The aim of this study was to explore the feasibility of remotely assessing and addressing family caregivers' support needs in terms of demand and acceptability using the Carer Support Needs Assessment Tool Intervention (CSNAT-I) in the HSCT context.

METHODS: CSNAT-I consists of an evidence-based tool and a five-stage person-centred process. The intervention was performed remotely by two designated nurses from two HSCT centres, one before HSCT and the second 6 weeks after (November 2020 to March 2021). To capture the experiences of using CSNAT-I, interviews were conducted with family caregivers and reflections were gathered from the designated nurses.

RESULTS: Of 34 eligible family caregivers, 27 participated, 70% were partners and the rest children, siblings or other relatives. The main support needs were knowing what to expect in the future and dealing with your feelings and worries. The most frequent support actions according to CSNAT-I were psychological support and medical information. Four categories summarised family caregivers and designated nurses' experiences: CSNAT-I was relevant and became an eye opener; nurses' experiences were important for enabling trustful CSNAT-I conversations; CSNAT-I provided family caregivers with support and a sense of security; and CSNAT-I gave family caregivers insight and enabled change.

CONCLUSION: Both family caregivers and designated nurses experienced that using CSNAT-I in an HSCT context was feasible and had the potential to provide valuable support for most of the participating family caregivers.

Place, publisher, year, edition, pages
2022. Vol. 30, no 11, p. 9039-9047
Keywords [en]
Allogeneic stem cell transplantation, CSNAT-I, Cancer, Family caregivers, Feasibility
National Category
Nursing
Identifiers
URN: urn:nbn:se:shh:diva-4589DOI: 10.1007/s00520-022-07306-wPubMedID: 35951098OAI: oai:DiVA.org:shh-4589DiVA, id: diva2:1699334
Available from: 2022-09-27 Created: 2022-09-27 Last updated: 2022-12-08Bibliographically approved

Open Access in DiVA

fulltext(605 kB)95 downloads
File information
File name FULLTEXT01.pdfFile size 605 kBChecksum SHA-512
8d3db41efb4a50a0026392ec8ce99cf51259bead90954b50376ed2933d6bd6c7189d897d20114677df404ffcf85fe26bc7513949dca5f7fc2b311be56d6c60b4
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Authority records

Bergkvist, Karin

Search in DiVA

By author/editor
Bergkvist, Karin
By organisation
Sophiahemmet University
In the same journal
Supportive Care in Cancer
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 95 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 103 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf