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Att leva med avancerad hjärtsvikt: en litteraturöversikt
Sophiahemmet University.
Sophiahemmet University.
2022 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesisAlternative title
To live with advanced heart failure : a literature review (English)
Abstract [sv]

Hjärtsvikt är ett komplext syndrom med hög morbiditet och mortalitet – och som blir allt vanligare världen över. Avancerad hjärtsvikt kan ha betydande konsekvenser för patienten. Ur denna synvinkel ville vi ta reda på hur patienter med avancerad hjärtsvikt upplever sin situation.

Syftet med litteraturöversikten var att belysa vuxna patienters upplevelser av att leva med avancerad hjärtsvikt.

Metoden var en litteraturöversikt med systematisk sökstrategi. Inklusionskriterier var kvalitativa originalartiklar där deltagande personer hade diagnosen hjärtsvikt i avancerad fas och var över 18 år. Exklusionskriterium var artiklar som inte var godkända av en etisk kommitté alternativt etiknämnd. 15 kvalitativa originalartiklar inkluderades. En induktiv tematisk analys gjordes utifrån Braun och Clark (2006).

Resultatet utmynnade i fyra teman och tio subteman. Det första temat “Symtomens inverkan på det dagliga livet” innefattade två subteman vilka var “Fysiska dimensioner” och “Psykiska dimensioner”. “Vårdrelaterade upplevelser” var det andra temat med “Uppfattningar om diagnos, prognos och behandling”, “Upplevelser av tillförlitlig och bristfällig vård” och “Ekonomisk börda” som subteman. Det tredje temat var “Copingstrategier” som inbegrep “Kognitiva copingstrategier” och “Religion och spiritualitet som copingstrategi”. Sista temat var “Emotionella och sociala aspekter av att leva och dö med avancerad hjärtsvikt”. Subteman var “Betydelsen av sociala relationer”, “Att förlora sin självständighet” och “Tankar och känslor inför framtiden och döden”.

Slutsatsen var att patienters upplevelser av avancerad hjärtsvikt var mångfacetterade och hade inverkan på flera aspekter av deras liv. Överlag uttryckte patienterna ett behov av information och kunskap om sitt tillstånd.

Abstract [en]

Heart failure is a complex syndrome that has both high morbidity and mortality - and is becoming more and more common world-wide. Advanced heart failure can have significant consequences for the patient. It was from this standpoint we wanted to look into how patients with advanced heart failure experience their situation.

The aim of the literature review was to elucidate adult patients’ experiences of living with advanced heart failure.

The method used was a literature review with a systematic search strategy. The inclusion criteria were qualitative original articles in which participants were diagnosed with advanced heart failure and were adults (18 years old or older). The exclusion criterion were articles without approval from an ethics committee or a review board. In total 15 original articles were included in this paper. An inductive thematic analysis was made based on Braun and Clark (2006).

The result led to four themes and ten subthemes. “The symptoms impact on daily life” included two subthemes which were “Physical dimensions” and “Psychological dimensions”. “Care-related experiences” were the second theme with “Perceptions of diagnosis, prognosis and treatment”, “Experiences of reliable and inadequate care” and “Financial burden” as subthemes. The third theme was “Coping strategies” that included “Cognitive coping strategies” and “Religion and spirituality as a coping strategy”. The last theme was “Emotional and social aspects of living with, and dying from, advanced heart failure”. Subthemes were “The importance of social relationships”, “To lose one's independence” and “Thoughts and feelings about the future and death”.

The conclusion was that many patients’ experience of living with advanced heart failure were diverse and influenced several aspects of their lives. But in general, most patients expressed a need for information and knowledge about their condition.

Place, publisher, year, edition, pages
2022. , p. 33
Keywords [en]
Advanced Heart Failure, Literature Review, Patients, Patient-Centered Care, Experiences
Keywords [sv]
Avancerad hjärtsvikt, Litteraturöversikt, Patienter, Personcentrerad vård, Upplevelser
National Category
Nursing
Identifiers
URN: urn:nbn:se:shh:diva-4433OAI: oai:DiVA.org:shh-4433DiVA, id: diva2:1653919
Educational program
Specialistsjuksköterskeprogrammet : inriktning hjärtsjukvård
Uppsok
Medicine
Supervisors
Examiners
Available from: 2022-04-26 Created: 2022-04-25 Last updated: 2022-04-26Bibliographically approved

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