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Support in the context of allogeneic hematopoietic stem cell transplantation: The perspectives of family caregivers
Sophiahemmet University.ORCID iD: 0000-0002-6331-8599
2020 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 46, article id 101740Article in journal (Refereed) Epub ahead of print
Abstract [en]

BACKGROUND AND AIM: Family caregivers are often involved in helping recipients during allogeneic hematopoietic stem cell transplantation (allo-HSCT). Although the distress that often arises along the trajectory is evident to family caregivers, research on their perceptions of providing and receiving support is limited. The aim of this study was to explore family caregivers' experiences of providing and receiving support during allo-HSCT.

METHOD: Data were collected through semi-structured interviews with fourteen family caregivers 16 weeks after the recipient's allo-HSCT. Inductive qualitative content analysis was used to analyse the data.

RESULTS: The analysis revealed four generic categories that focus on prerequisites for family caregivers' ability to provide support: Individual characteristics influence the ability to be supportive, Social context influences the ability to be supportive, Medical information provides knowledge and a sense of participation and Interaction with the healthcare organization provides a sense of participation. These prerequisites are linked in the fifth generic category: Family caregivers' support is multifaceted and dependent on the recipient's health.

CONCLUSIONS: Family caregivers' risk of experiencing a stronger sense of uncertainty and lack of participation is higher in the absence of the above-mentioned prerequisites. Professional support is thus required, which implies that the healthcare organization is responsible for identifying the needs of each family caregiver and delivering individualized support.

Place, publisher, year, edition, pages
2020. Vol. 46, article id 101740
Keywords [en]
Allogeneic hematopoietic stem cell transplantation, Family caregivers, Support
National Category
Nursing
Identifiers
URN: urn:nbn:se:shh:diva-3715DOI: 10.1016/j.ejon.2020.101740PubMedID: 32353737OAI: oai:DiVA.org:shh-3715DiVA, id: diva2:1431152
Available from: 2020-05-19 Created: 2020-05-19 Last updated: 2020-05-19Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • ieee
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  • vancouver
  • Other style
More styles
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  • de-DE
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  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
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More languages
Output format
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  • asciidoc
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