shh.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Family caregivers' support needs during allo-HSCT: A longitudinal study
Sophiahemmet University.ORCID iD: 0000-0002-6331-8599
Show others and affiliations
2021 (English)In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 29, no 6, p. 3347-3356Article in journal (Refereed) Published
Abstract [en]

PURPOSE: The study aimed to explore family caregivers' support needs prior to allo-HSCT, how these change over time and whether they are associated with demographic factors and caregiver outcome.

METHODS: This longitudinal repeated measure study included 87 family caregivers of allo-HSCT recipients: 63% were partners, 74% women, 65% lived with the recipient, and their mean age was 54 years. They completed the 14-item Carer Support Needs Assessment Tool (CSNAT) and caregiver outcome measures (caregiver burden, anxiety, depression, preparedness for caregiving and general health) prior to allo-HSCT and 3, 6 and 16 weeks later.

RESULTS: The two top support needs prior to allo-HSCT were 'knowing what to expect in the future' (79%) and 'dealing with your own feelings' (70%). Several support needs were associated with younger age and not being a partner, while higher needs implied worse caregiver outcomes for at least one of the outcomes prior to transplantation. Most support needs remained the same at the last follow-up.

CONCLUSION: The findings that high support needs are often associated with worse caregiver outcomes and most support needs do not diminish over time indicate that more attention should be placed on the situation of family caregivers.

Place, publisher, year, edition, pages
2021. Vol. 29, no 6, p. 3347-3356
Keywords [en]
Allo-HSCT, CSNAT, Family caregivers, Haematological malignancies, Support needs
National Category
Nursing
Identifiers
URN: urn:nbn:se:shh:diva-3868DOI: 10.1007/s00520-020-05853-8PubMedID: 33125539OAI: oai:DiVA.org:shh-3868DiVA, id: diva2:1501875
Available from: 2020-11-18 Created: 2020-11-18 Last updated: 2021-06-08Bibliographically approved

Open Access in DiVA

fulltext(2010 kB)129 downloads
File information
File name FULLTEXT01.pdfFile size 2010 kBChecksum SHA-512
bd3547a61db8f4801072d64e99d0d7a80627c8011b00ad51e4857223c6b9f073936083738421f3bb377e712cfe672123858bd58961b14d838eeb78cf7a071a32
Type fulltextMimetype application/pdf

Other links

Publisher's full textPubMed

Authority records

Bergkvist, Karin

Search in DiVA

By author/editor
Bergkvist, Karin
By organisation
Sophiahemmet University
In the same journal
Supportive Care in Cancer
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 129 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 101 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf