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Kabir, Z. N., Leung, A. Y., Grundberg, Å., Boström, A.-M., Lämås, K., Kallström, A. P., . . . Konradsen, H. (2020). Care of family caregivers of persons with dementia (CaFCa) through a tailor-made mobile app: Study protocol of a complex intervention study. BMC Geriatrics, 20(1), Article ID 305.
Open this publication in new window or tab >>Care of family caregivers of persons with dementia (CaFCa) through a tailor-made mobile app: Study protocol of a complex intervention study
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2020 (English)In: BMC Geriatrics, ISSN 1471-2318, E-ISSN 1471-2318, Vol. 20, no 1, article id 305Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Globally, family members account for the main source of caregiving of persons with dementia living at home. Providing care to family members with dementia often has negative health consequences for caregivers such as stress, depression and low quality of life. Yet, formal support for family caregivers (FCs) is limited. Telehealth technology has the potential to provide health care and social support to FCs. This study aims to assess the effectiveness of providing support by healthcare professionals (HPs) through a mobile app in reducing stress, depressive symptoms and loneliness, and improving mental health and quality of life of FCs of persons with dementia.

METHODS: Using a pragmatic intervention design, this study will use pre- and post-intervention assessment to evaluate the effectiveness of the proposed intervention in a sample of 78 FCs of persons with dementia (PWD). The intervention will be implemented by approximately 5 HPs specialized in dementia care based in the municipalities in Sweden. The main thrust of the intervention is to provide professional support, with help of an interactive mobile app, to family members in their caregiving role for PWDs. Qualitative interviews with HPs and FCs form the groundwork of the development of the mobile app. By using the app on smart phone or tablet, the FC, in groups of 8-10, will communicate with peers and a HP exchanging ideas on how to deal with PWD's behavioral and cognitive changes and get support. They will also be able to discuss stressful events and access mindfulness exercises focused on themselves. Quantitative data will be collected before and at three time points after the 8-week intervention to assess changes in the health outcomes of the FCs. In-depth interviews will be conducted after the intervention to capture the experiences of FCs and HPs regarding the ease of use and acceptability of the app.

DISCUSSION: This tailor-made mobile app has the high potential to be a practical platform for supporting FCs to alleviate stress and improve mental health irrespective of distance to the nearest health care or social service center.

TRIAL REGISTRATION: ISRCTN, ISRCTN46137262 . Registered 10 October 2019.

Keywords
Caregiver stress, Caregiving, Depressive symptoms, Family caregiver, Loneliness, Person with dementia, Telehealth, mHealth
National Category
Nursing
Identifiers
urn:nbn:se:shh:diva-3799 (URN)10.1186/s12877-020-01712-7 (DOI)32847495 (PubMedID)
Available from: 2020-09-21 Created: 2020-09-21 Last updated: 2021-10-08Bibliographically approved
Gransjön Craftman, Å., Swall, A., Båkman, K., Grundberg, Å. & Hagelin, C. L. (2020). Caring for older people with dementia reliving past trauma. Nursing Ethics, 27(2), 621-633, Article ID 969733019864152.
Open this publication in new window or tab >>Caring for older people with dementia reliving past trauma
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2020 (English)In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 27, no 2, p. 621-633, article id 969733019864152Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: The occurrence of behavioural changes and problems, and degree of paranoid thoughts, are significantly higher among people who have experienced extreme trauma such as during the Holocaust. People with dementia and traumatic past experiences may have flashbacks reminding them of these experiences, which is of relevance in caring situations. In nursing homes for people with dementia, nursing assistants are often the group of staff who provide help with personal needs. They have firsthand experience of care and managing the devastating outcomes of inadequate understanding of a person's past experiences.

AIM: The aim was to describe nursing assistants' experiences of caring for older people with dementia who have experienced Holocaust trauma.

RESEARCH DESIGN: A qualitative descriptive and inductive approach was used, including qualitative interviews and content analysis.

PARTICIPANTS AND RESEARCH CONTEXT: Nine nursing assistants from a Jewish nursing home were interviewed.

ETHICAL CONSIDERATIONS: The study was approved by the Regional Ethical Review Board, Stockholm.

FINDINGS: The theme 'Adapting and following the survivors' expression of their situation' was built on two categories: Knowing the life story enables adjustments in the care and Need for flexibility in managing emotional expressions.

DISCUSSION AND CONCLUSION: The world still witnesses genocidal violence and such traumatic experiences will therefore be reflected in different ways when caring for survivors with dementia in the future. Person-centred care and an awareness of the meaning of being a survivor of severe trauma make it possible to avoid negative triggers, and confirm emotions and comfort people during negative flashbacks in caring situations and environments. Nursing assistants' patience and empathy were supported by a wider understanding of the behaviour of people with dementia who have survived trauma.

Keywords
Dementia, nursing home, professional caregivers, survivors, trauma
National Category
Nursing
Identifiers
urn:nbn:se:shh:diva-3446 (URN)10.1177/0969733019864152 (DOI)31462155 (PubMedID)
Available from: 2019-09-18 Created: 2019-09-18 Last updated: 2020-06-02Bibliographically approved
Swall, A., Gransjön Craftman, Å., Grundberg, Å., Wiklund, E., Väliaho, N. & Hagelin, C. L. (2019). Dog handlers' experiences of therapy dogs' impact on life near death for persons with dementia. International Journal of Palliative Nursing, 25(2), 65-71
Open this publication in new window or tab >>Dog handlers' experiences of therapy dogs' impact on life near death for persons with dementia
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2019 (English)In: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 25, no 2, p. 65-71Article in journal (Refereed) Published
Abstract [en]

BACKGROUND:: Persons with dementia may have severe physical and psychological symptoms at the end of life. A therapy dog used in their care can provide comfort and relieve their anxiety. The dog handler guides the dog during the interaction with the patient.

AIM:: To describe the impact of therapy dogs on people with dementia in the final stages of life from the perspective of the dog handler.

METHODS:: Interviews were conducted and analysed using qualitative content analysis.

FINDINGS:: The dog provides comfort and relief through its presence and by responding to the physical and emotional expressions of the dying person.

CONCLUSIONS:: Interactions with dogs were found to have a positive impact on persons with dementia and eased the symptoms associated with end of life according to the dog handlers.

Keywords
Animal-assisted therapy, Dementia, Palliative care, Therapy dog
National Category
Nursing
Identifiers
urn:nbn:se:shh:diva-3248 (URN)10.12968/ijpn.2019.25.2.65 (DOI)30785819 (PubMedID)
Available from: 2019-03-05 Created: 2019-03-05 Last updated: 2020-06-02Bibliographically approved
Gransjön Craftman, Å., Grundberg, Å. & Westerbotn, M. (2018). Experiences of home care assistants providing social care to older people: A context in transition. International Journal of Older People Nursing, 13(4), Article ID e12207.
Open this publication in new window or tab >>Experiences of home care assistants providing social care to older people: A context in transition
2018 (English)In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 13, no 4, article id e12207Article in journal (Refereed) Published
Abstract [en]

AIM: The aim was to describe home care assistants' (HCA) experiences of providing social care in older people's own homes.

BACKGROUND: With the increase in average life expectancy and related growth of the elder population, addressing geriatric care needs has become an increasingly vital issue. However, the frontline workforce faces major challenges in meeting these needs, including a lack of trained professionals entering the field.

DESIGN: A qualitative inductive design was used.

METHODS: A descriptive, qualitative study using focus group interviews and content analysis.

FINDINGS: The findings revealed that HCAs are active in an area facing challenges due to an older home-dwelling generation. Transfer of tasks should be reviewed considering changes to the workforce's skill mix brought on by task shifting.

CONCLUSIONS: Certain prerequisites are needed to enable unlicensed assistive personnel to perform a good job; they also need to receive affirmation that they are a crucial workforce carrying out multifaceted tasks. To improve and maintain the pull factors of social care work, it is crucial to clarify how older people's requirements influence the daily care relation.

IMPLICATIONS FOR PRACTICE: The findings highlight HCAs' blurred responsibility when providing nursing and care to older people with multiple chronic conditions and functional disabilities. Increasing expectations are placed upon HCAs to cope with practical situations that are theoretically outside the bounds of social care. The findings contribute knowledge to further development of collaboration between social and health care providers as well as the important affirmation of this unlicensed personnel group in transition. A long-term plan is therefore needed to provide HCAs with the skills and tools they need to deliver care and support to older people with a variety of needs.

Keywords
health care, home care assistant, older people, own home, social care, social home care, unlicensed assistive personnel
National Category
Nursing
Identifiers
urn:nbn:se:shh:diva-3093 (URN)10.1111/opn.12207 (DOI)30063125 (PubMedID)
Available from: 2018-08-09 Created: 2018-08-09 Last updated: 2020-06-02Bibliographically approved
Grundberg, Å., Hansson, A., Hillerås, P. & Religa, D. (2016). District nurses' perspectives on detecting mental health problems and promoting mental health among community-dwelling seniors with multimorbidity. Journal of Clinical Nursing, 25(17-18), 2590-2599
Open this publication in new window or tab >>District nurses' perspectives on detecting mental health problems and promoting mental health among community-dwelling seniors with multimorbidity
2016 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 25, no 17-18, p. 2590-2599Article in journal (Refereed) Published
Abstract [en]

AIMS AND OBJECTIVES:

To describe district nurses' perspectives on detecting mental health problems and promoting mental health among homebound older people with multimorbidity.

BACKGROUND:

Mental health problems among older people with multiple chronic conditions, that is, multimorbidity, are challenging issues. These patients' homes often serve as arenas in which district nurses can promote health. Mental health promotion must be studied in greater depth within primary care because older people with multimorbidity are particularly prone to developing poor mental health, which can go undetected and untreated.

DESIGN:

A descriptive, qualitative study using semi-structured interviews and content analysis.

METHODS:

Twenty-five district nurses completed individual or focus group interviews. Data were analysed using qualitative content analysis.

RESULTS:

Most district nurses stated that detecting mental health problems and promoting mental health were important tasks but that they typically focused on more practical home health care tasks. The findings revealed that district nurses focused on assessment, collaboration and social support as means of detecting mental health problems and promoting mental health.

CONCLUSIONS:

The district nurses described various factors and actions that appeared to be important prerequisites for their involvement in primary mental health care. Nevertheless, there were no established goals for mental health promotion, and district nurses often seemed to depend on their collaboration with other actors. Our findings indicated that district nurses cannot bear the primary responsibility for the early detection of mental health problems and early interventions to promote mental health within this population.

RELEVANCE TO CLINICAL PRACTICE:

The findings of this study indicated that workforce training and collaboration between different care providers are important elements in the future development of this field. Early detection and early treatment of mental health-related issues should also be stated as explicit objectives in the provision of care to community-dwelling older people with multimorbidity.

Keywords
Sweden; Ageing; District nurse; Mental health; Mental health promotion; Municipal care
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:shh:diva-2000 (URN)
Available from: 2015-12-02 Created: 2015-12-02 Last updated: 2020-06-02Bibliographically approved
Grundberg, Å., Hansson, A., Religa, D. & Hillerås, P. (2016). Home care assistants' perspectives on detecting mental health problems and promoting mental health among community-dwelling seniors with multimorbidity. Journal of Multidisciplinary Healthcare, 9, 83-95
Open this publication in new window or tab >>Home care assistants' perspectives on detecting mental health problems and promoting mental health among community-dwelling seniors with multimorbidity
2016 (English)In: Journal of Multidisciplinary Healthcare, ISSN 1178-2390, E-ISSN 1178-2390, Vol. 9, p. 83-95Article in journal (Refereed) Published
Abstract [en]

Introduction: Elderly people with multiple chronic conditions, or multimorbidity, are at risk of developing poor mental health. These seniors often remain in their homes with support from home care assistants (HCAs). Mental health promotion by HCAs needs to be studied further because they may be among the first to observe changes in clients’ mental health status.

Aim: To describe HCAs’ perspectives on detecting mental health problems and promoting mental health among homebound seniors with multimorbidity.

Methods: We applied a descriptive qualitative study design using semi-structured interviews. Content analyses were performed on five focus group interviews conducted in 2014 with 26 HCAs.

Results: Most HCAs stated that they were experienced in caring for clients with mental health problems such as anxiety, depression, sleep problems, and high alcohol consumption. The HCAs mentioned as causes, or risk factors, multiple chronic conditions, feelings of loneliness, and social isolation. The findings reveal that continuity of care and seniors’ own thoughts and perceptions were essential to detecting mental health problems. Observation, collaboration, and social support emerged as important means of detecting mental health problems and promoting mental health. Conclusion: The HCAs had knowledge of risk factors, but they seemed insecure about which health professionals had the primary responsibility for mental health. They also seemed to have detected early signs of mental health problems, even though good personal knowledge of the client and continuity in home visits were crucial to do so. When it came to mental health promotion, the suggestions related to the aim of ending social isolation, decreasing feelings of loneliness, and increasing physical activity. The results indicate that the HCAs seemed dependent on supervision by district nurses and on care managers’ decisions to support the needed care, to schedule assignments related to the detection of mental health problems, and to promote mental health.

Keywords
Home care assistants, Mental health promotion, Municipal care, Older people, Sweden
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:shh:diva-2001 (URN)
Available from: 2015-12-02 Created: 2015-12-02 Last updated: 2020-06-02Bibliographically approved
Grundberg, Å. (2015). Mental health promotion among community-dwelling seniors with multimorbidity: perspectives of seniors, district nurses and home care assistants. (Doctoral dissertation). Stockholm: Karolinska Institutet
Open this publication in new window or tab >>Mental health promotion among community-dwelling seniors with multimorbidity: perspectives of seniors, district nurses and home care assistants
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The prevalence of mental illness is increasing among the older population in Sweden. One of the most vulnerable groups for mental health problems is older persons with multimorbidity, i.e. seniors with multiple chronic conditions. Many of them remain in their own homes with a comprehensive and complex need of support and healthcare, mainly provided by home care assistants (HCAs) and district nurses (DNs). However, the detection of mental health problems for adequate treatment or to promote mental health among community-dwelling seniors with multimorbidity, calls for skills and competences in this area.This thesis aimed to gain a deeper understanding of how mental health may be promoted among community-dwelling seniors with multiple chronic conditions. Four studies have been included in this thesis (I-IV). All studies had a qualitative descriptive design with either a phenomenographic approach or latent and manifest qualitative content analysis technique. The aim of study I was to describe the variations in how community-dwelling seniors with multimorbidity perceived the concept of mental health and what may influence it. The findings showed the participants conceptualised mental health as having both positive and negative facets. The participants further conceived that social contact, physical activity and optimism may improve mental health, while social isolation, ageing, and chronic pain may worsen it. Study II aimed to describe the experience of health-promoting dialogues from the perspective of community-dwelling seniors with multimorbidity, and what these seniors believed to be important for achieving a dialogue that may promote their mental health. The main finding was the necessity of being seen as a unique individual by an accessible and competent person. Further, the participants missed having friends and relatives to talk to and they especially lacked healthcare or social service providers for health-promoting dialogues that may promote mental health. The aim of study III was to describe DNs’ perspectives on detecting mental health problems and promoting mental health among community-dwelling seniors with multimorbidity. Findings revealed that the DNs’ focus was on assessment, collaboration and social support as a way of detecting mental health problems and promoting mental health. Study IV described HCAs’ perspectives on detecting mental health problems and promoting mental health among the seniors in focus. The findings revealed that continuity of care and the seniors’ own thoughts and perceptions were regarded as essential for the detection of mental health problems. Further, observation, collaboration, and social support emerged as important means of detecting mental health problems and promoting mental health.Conclusions: The results of this thesis are based on interviews and show that: 1) Seniors with multimorbidity should have an opportunity to describe how multiple chronic conditions may affect their life situation; 2) An optimal level of care can be achieved through continuity, involvement, and by providing a health-promoting dialogue based on the person’s wishes and needs; 3) Even if DNs seemed engaged in primary mental healthcare, there were no expressed goals set in the improvement of mental health, and it seemed that these DNs could not bear the primary responsibility for early detection of mental health problems and early interventions to improve mental health; 4) HCAs had knowledge about risk factors for mental health problems and it appears that they were dependent on care managers’ decision-making in granted support, as well as supervision from DNs in the detection of mental health problems and to promote mental health.In summary, the finding in the present thesis demonstrates that managing mental health problems is still an ongoing challenge for those organisations providing continuity in home care and home healthcare for homebound elderly persons with complex chronic conditions. The finding in the thesis also shows that DNs and HCAs seem to be dependent on each other in this area. Mental health promotion was expressed as an important assignment among DNs and HCAs, even though they describe different prerequisites and factors which could be seen as barriers in the detection of common mental health problems such as depression, anxiety and sleep problems. These personnel further described difficulties in collaboration and transmission of information between care- and healthcare providers from the community and primary care context. Social and physical interventions - as well as social contacts and social support to break social isolation - seemed important according to all the informants, with their different perspectives of how mental health may be promoted.

Place, publisher, year, edition, pages
Stockholm: Karolinska Institutet, 2015. p. 95
Keywords
Ageing, Care of older people, District nurse, Home care assistants, Mental health, Mental health promotion, Municipal care, Nursing, Older people, Primary healthcare, Sweden
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:shh:diva-2002 (URN)978-91-7676-076-5 (ISBN)
Public defence
2015-12-11, Erforssalen, Sophiahemmet Högskola, Valhallavägen 91, Ingång R, Stockholm, 13:00
Opponent
Supervisors
Available from: 2015-12-02 Created: 2015-12-02 Last updated: 2020-06-02Bibliographically approved
Grundberg, Å., Ebbeskog, B., Gustafsson, S. A. & Religa, D. (2014). Mental health-promoting dialogues from the perspective of community-dwelling seniors with multimorbidity. Journal of Multidisciplinary Healthcare, 7, 189-199
Open this publication in new window or tab >>Mental health-promoting dialogues from the perspective of community-dwelling seniors with multimorbidity
2014 (English)In: Journal of Multidisciplinary Healthcare, ISSN 1178-2390, E-ISSN 1178-2390, Vol. 7, p. 189-199Article in journal (Refereed) Published
Abstract [en]

Mental health promotion needs to be studied more deeply within the context of primary care, because persons with multiple chronic conditions are at risk of developing poor mental health. In order to make progress in the understanding of mental health promotion, the aim of this study was to describe the experiences of health-promoting dialogues from the perspective of community-dwelling seniors with multimorbidity - what these seniors believe is important for achieving a dialogue that may promote their mental health. Seven interviews with six women and one man, aged 83-96 years, were analyzed using qualitative content analysis. The results were summarized into nine subcategories and three categories. The underlying meaning of the text was formulated into an overarching theme that embraced every category, "perceived and well-managed as a unique individual". These seniors with multimorbidity missed someone to talk to about their mental health, and needed partners that were accessible for health dialogues that could promote mental health. The participants missed friends and relatives to talk to and they (crucially) lacked health care or social service providers for health-promoting dialogues that may promote mental health. An optimal level of care can be achieved through involvement, continuity, and by providing a health-promoting dialogue based on seniors' needs and wishes, with the remembrance that general health promotion also may promote mental health. Implications for clinical practice and further research are discussed.

Keywords
Aged, Care of older people, Mental health-promotion, Municipal care
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:shh:diva-1999 (URN)10.2147/JMDH.S59307 (DOI)24812516 (PubMedID)
Available from: 2015-12-02 Created: 2015-12-02 Last updated: 2020-06-02Bibliographically approved
Grundberg, Å., Ebbeskog, B., Abrandt Dahlgren, M. & Religa, D. (2012). How community-dwelling seniors with multimorbidity conceive the concept of mental health and factors that may influence it: a phenomenographic study. International Journal of Qualitative Studies on Health and Well-being, 7, 19716
Open this publication in new window or tab >>How community-dwelling seniors with multimorbidity conceive the concept of mental health and factors that may influence it: a phenomenographic study
2012 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 7, p. 19716-Article in journal (Refereed) Published
Abstract [en]

Multimorbidity, that is, the coexistence of chronic diseases, is associated with mental health issues among elderly people. In Sweden, seniors with multimorbidity often live at home and receive care from nursing aides and district nurses. The aim of this study was to describe the variation in how community-dwelling seniors with multimorbidity perceive the concept of mental health and what may influence it. Thirteen semi-structured interviews were analysed using a phenomenographic approach. Six qualitatively different ways of understanding the concept of mental health and factors that may influence it, reflecting key variations of meaning, were identified. The discerned categories were: mental health is dependent on desirable feelings and social contacts, mental health is dependent on undesirable feelings and social isolation, mental health is dependent on power of the mind and ability to control thoughts, mental health is dependent on powerlessness of the mind and inability to control thoughts, mental health is dependent on active behaviour and a healthy lifestyle, and mental health is dependent on passive behaviour and physical inactivity. According to the respondents' view, the concept of mental health can be defined as how an individual feels, thinks, and acts and also includes a positive as well as a negative aspect. Social contacts, physical activity, and optimism may improve mental health while social isolation, ageing, and chronic pain may worsen it. Findings highlight the importance of individually definitions of mental health and that community-dwelling seniors with multimorbidity may describe how multiple chronic conditions can affect their life situation. It is essential to organize the health care system to provide individual health promotion dialogues, and future research should address the prerequisites for conducting mental health promotion dialogues.

Keywords
Aged, Care of older people, Mental health promotion, Municipal care, Nursing, Phenomenography, Primary health care
National Category
Gerontology, specialising in Medical and Health Sciences
Identifiers
urn:nbn:se:shh:diva-1998 (URN)10.3402/qhw.v7i0.19716 (DOI)000312271000001 ()23237629 (PubMedID)
Available from: 2015-12-02 Created: 2015-12-02 Last updated: 2020-06-02Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-5923-8764

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